Książka Two Small Footprints in Wet Sand Anne-Dauphine Julliand

Two Small Footprints in Wet Sand

The Uplifting True Story of a Mother's Brave Quest to Save Her Daughter

Język: Angielski
Oprawa: Miękka
Dostępność: 50 % szansa
Przeszukamy cały świat
62.26
Thais is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beac...

Informacje o książce

Język
Angielski
Oprawa
Książka - Miękka
Data wydania
2015
strony
208
EAN
9781628724448
ISBN
1628724447
Enbook ID
06798285
Waga
330
Wymiary
226 x 153 x 21

Pełny opis

Thais is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beach. But her footprints in the sand, with toes turned out, tell a different story. "Two Small Footprints in Wet Sand" relates the overwhelming tragedy experienced by a family as a result of a genetic disorder. A true tale told by a mother, it's the story of a little girl, of family, friends, and the medical community united to define life by its beauty rather than its length. On the day Thais turns two, her mother, the author Anne-Dauphine Julliand, learns that her child has an untreatable genetic disease, the rarest of the rare, a silent disorder that will slowly paralyze her daughter's nervous system and kill her. Metachromatic leukodystrophy--MLD--is the diagnosis. There is no cure. While the disease may be grim, neither this book nor the people in it are. Grace, dignity, and most of all love mark the lives of all those involved in the care of Thais. Julliand does not play down the pain of her child or of her family, or the exhaustion, discouragement, or burden each of them carries. She promises her daughter a full life--not a life like other children have--but a happy life, a life of love. Thais's family and the medical staff around her fight to provide comfort and efficient care, to conserve her dignity, to give her love, to "add life to days when we cannot add days to life."

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